I just got through, no, got through sounds like some kind of victory. I just crawled while crying and begging for death through two of the most painful days I have had since I was diagnosed with fibromyalgia. I can honestly say I know how it feels when every fiber of your body is hurting, not something I wanted the distinct honor of proclaiming but I know nevertheless.
I have to confess when you are laying in bed and the only thing that is mildly working is your brain and its reasoning and facts are somewhat distorted, you come up with a lot of crazy shit. For example the few minutes I sent myself in a free falling panic when I thought about how having a terminal illness would be easier to deal with because at least there was a foreseeable ending.
Although there are rare days when I can actually make it through a day without the aid of pain medication or when walking down the hallway to the bathroom doesn’t seem like a hike on the Appalachian Trail, days when I act like I’m a normal overweight fifty nine year old who has slowed down a little with age and extra padding, there are actually hundreds of more days when I cry, get angry and flip off a maybe existing god that could be so cruel to let the remaining of my days be so painful.
I have so many start over positive days I’ve lost count. I try not to let the pain get the best of me and send me into a depression but it seems the fight is getting harder everyday. I fight to hang on to my life and on days when I feel maybe thirty percent of a person my age and extra padding level would feel, I work like a son of a bitch to prove to everyone around me and of course to the maybe existing god and myself that I am normal, so fuck you!
Then the next few days I am sent to my bed to cry and hurt while I think about all the things I did wrong on my somewhat good day.
Living with fibromyalgia is not easy, its a struggle everyday even *good days* and when you see me and I can carry on a conversation and shop at a thrift store for an hour or ride in my car as a passenger of course for a couple of hour or go grocery shopping, please know I am trying my best and before I left home I prepared for my day by taking double doses of pain medication, put on a bra that doesn’t feel like its digging into my body and will have to be surgically removed and nine chances out of ten no panties because I can’t stand the feel of the elastic on my skin and a handicap sticker so I won’t have to walk as far back to the car. ……………..